ICORD Tel Aviv 2019

ICORD is an International Society for all individuals active in rare diseases and/or orphan drugs, including health care, research, academic, industry, patients, patient groups, regulatory authorities, health authorities, and public policy professionals.
 
During recent decades, the awareness on problems associated with Rare Diseases has increased markedly. Moreover, the international collaboration on Rare Diseases has improved. However, there are still many unmet needs for patients with Rare Diseases, not least in developing countries. 

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Speakers

Prof. Manuel Posada

Director of Institute of Rare Diseases Research (ISCIII) and President of ICORD

Prof. Ada E. Yonath, Israel

Nobel Prize in Chemistry
Crystallography, "From Basic Science to Medicine"

Prof. Mats G. Hansson

Director of the Centre for Research Ethics & Bioethics, Uppsala University, Sweden

Prof. Dian Donnai

Manchester Centre for Genomic Medicine & Saint Mary’s Hospital, UK

Dr. Arthur L. Beaudet

Department of Molecular and Human Genetics, Baylor College of Medicine, Houston,TX, USA

Prof. Arnold Munnich

Imagine Institute for genetic diseases, Hôpital Necker Enfants Malades, Université Paris Descartes

Dr. Domenica Taruscio

National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy

Dr. Emilio J. A. Roldán

Div Innovation, Gador SA, Buenos Aires, Argentina

Joan X. Comella (MD, PhD)

CEO, Vall d´Hebron Research Institute, Barcelona, Spain

Prof. Varda Shalev (MD, MPA)

CEO, Kahn Sagol Maccabi Research and Innovation Institute, Israel

Prof. Zohar Argov

Hadassah-Hebrew University Medical School, Jerusalem, Israel

Dr. Hagit Baris Feldman

Sourasky Medical Center & Chair of the Israeli Society of Medical Geneticists

Prof. Henri G. (Han) Brunner

Radboud UMC & Maastricht University Medical Center, The Netherlands

Dr. Marlene E. Haffner

CEO of Haffner Associates

Prof. Eli Sprecher

Department of Dermatology at the Tel Aviv Sourasky Medical Center

Dr. Liesbeth J. Siderius

GGD IJsselland

Prof. Rechavi Gideon

Head of the Sheba Cancer Research Center (SCRC), Israel

Barbara H. Wuebbels (RN, MS)

Chairman, Professional Patient Advocates in the Life Sciences

Prof. Luis Alejandro Barrera

Clinic On Inborn Errors of Metabolism, San Ignacio Hospital, Bogotá, Colombia

Prof. Lina Basel - Salmon

Head, Institute of Genetics, Beilinson Hospital & Schneider Medical Center

Dr. Simon Day

Clinical Trials Consulting & Training Limited, UK

Prof. Orly Elpeleg

Department of Genetics, Hadassah Medical Center, Jerusalem

Dr. Ashok Gupta

Chairman, State Technical Committee on Rare Diseases, India

Yukiko Nishimura

President and Founder of NPO ASrid, Japan

Dr. Rivka Sukenik Halevy

Head, Prenatal Genetics service, Raphael Recanati Genetic Institute, Rabin Medical Center

Annick Raas-Rothschild, MD

Sheba -Tel Hashomer Medical Center, Israel

Prof. Gili Kenet

Director of the Israel National Hemophilia Center and Thrombosis Institute

Dr. Einat Makler-Shiran

Israel

 

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